Grat article about Vikings Defensive Line Coach Karl Dunbar
and his vilitigo. Fox Sports did the article.
You can read it here.
Thursday, November 10, 2011
Sunday, October 30, 2011
Unusual Vit Spot
I noticied yesterday that I have a vit spot on my tummy in the shape of toes & a baby foot.Now to most this wouldn't really matter BUT in my family its kinda unusual. See my mom had two sisters before her. The oldest one passed away when she was little. Before she did she had burned her feet while walking on the farm. On one foot she lost two toes because of it. My grandmother was pregnant when she passed away. The baby was born with a birthmark in the shape of the same foot with the missing toes! So when I noticed this I had to show my mother. Does it mean anything or just a coincidence? I don't know..but I don't think its a coincidence either. I'd get a picture but as I'm so light skinned I'm not sure it would show up too well too see.
Monday, October 24, 2011
Skin Disorder Not A Life Changer
A very enlightening video on youtube. Defintely worth watching.
Its nice to see someone who is so accepting of this condition.
Video
Its nice to see someone who is so accepting of this condition.
Video
Monday, October 10, 2011
Stigma Of Vitligo
A very informative photo journey by Time Magazine about people
with Vitlitgo. A lot of the world has misunderstandings about the
condition and those with vitiligo are subject to ignorance,prejudice and
misunderstandings.
View the photo slide show here
with Vitlitgo. A lot of the world has misunderstandings about the
condition and those with vitiligo are subject to ignorance,prejudice and
misunderstandings.
View the photo slide show here
Tuesday, October 4, 2011
Understanding Vitiligo-Causes & Theories
There is a very helpful video posted by Clinuvel Pharmaceutical about Vitiligo.
Here is a brief overview about things they discuss. I highly recommend watching
the video and taking a look at their website.
Video
20 genes have some role in development
Trigger factors
Viruses
hormonal changes
trauma to skin
psychological trauma & stress
industrial chemicals
automimmune theory -nonsegmental
segmental -neural theory
Current research
Genetic defects of melanocytes
Involvement of proteins
role of nitric oxide
Melanocortins & alpha-MSH
Here is a brief overview about things they discuss. I highly recommend watching
the video and taking a look at their website.
Video
20 genes have some role in development
Trigger factors
Viruses
hormonal changes
trauma to skin
psychological trauma & stress
industrial chemicals
automimmune theory -nonsegmental
segmental -neural theory
Current research
Genetic defects of melanocytes
Involvement of proteins
role of nitric oxide
Melanocortins & alpha-MSH
Check Out Another Blog
Zoey has shared her website with me. She also has vitiligo. Check it out. She offers another
perspective on having the condition. Really interesting read. Thank you so much Zoey for sharing
with me. I have been wanting input from others and this is really appreciated. As with any condition or
illness Vitiligo affects each of us differently and we all handle having it differently.
You can find her website here
http://vitiligolovesocd.com/
perspective on having the condition. Really interesting read. Thank you so much Zoey for sharing
with me. I have been wanting input from others and this is really appreciated. As with any condition or
illness Vitiligo affects each of us differently and we all handle having it differently.
You can find her website here
http://vitiligolovesocd.com/
Breakthrough Therapy For Vilitgo
You can check out the video here on youtube
It is about the therapy SCENESSE
Video
The wesbsite is located here
about the clinical trial being held with SCENESSE.
What do you all think about this new therapy?
Are you currently taking any medicines for your vit?
I'm not as the risks of Protopic have scared me off it.
But I would like to hear from others about medicines
and treatments.
It is about the therapy SCENESSE
Video
The wesbsite is located here
about the clinical trial being held with SCENESSE.
What do you all think about this new therapy?
Are you currently taking any medicines for your vit?
I'm not as the risks of Protopic have scared me off it.
But I would like to hear from others about medicines
and treatments.
Tuesday, September 27, 2011
Good Photo Of My Hands
I finally got a good photo today of my hands.
My vit is most obvious on my hands.
I do have it in some other locations but they aren't as noticeable.
This was taken outside today.
My vit is most obvious on my hands.
I do have it in some other locations but they aren't as noticeable.
This was taken outside today.
Thursday, September 8, 2011
Vitiligo Awareness Products
The wonderful artist Bezfaery has added to her Zazzle store. You can now get various items with the Vitligo art piece she created for me. She has a range of items from keychains, coffee mugs,t-shirts & bags. It is a great way to show your support for Vitligo and also a great artist.
You can find her zazzle store here
You can find her zazzle store here
Sunday, August 28, 2011
Help Establish Vitiligo World Day
Petition to help establish a World Vitilgo Day.
You can read more info & sign it here
We need to help raise awareness around the world!
You can read more info & sign it here
We need to help raise awareness around the world!
Friday, August 19, 2011
Awareness Bracelet
I received my Vitiligo Awareness bracelet today from
Vitiligo Bond Inc on Facebook. Its lavender in color.
If you like awareness bracelets you should get one.
So I took a photo of my hand with the bracelet. It didnt
come out well but I'm going to share it anyways.
You can see some of my Vitilgo in the photo.
Vitiligo Bond Inc on Facebook. Its lavender in color.
If you like awareness bracelets you should get one.
So I took a photo of my hand with the bracelet. It didnt
come out well but I'm going to share it anyways.
You can see some of my Vitilgo in the photo.
Sunday, August 7, 2011
Love & Spots
I came across this artwork on Deviantart.
It says a lot about love & support even with having
Vitligo.
The artist is ~zombie31 and the artist's Deviantart
Gallery can be found here
It says a lot about love & support even with having
Vitligo.
The artist is ~zombie31 and the artist's Deviantart
Gallery can be found here
Sunday, July 10, 2011
Being A Role Model
I had this insight & wanted to share it.
I'm pretty comfortable & accepting of having Vitiligo.
Now I do realize this isn't the case for everyone.
I have a great support system & am very comfortable
in my body.
I also have three kids. In the middle is my 9 yr old
daughter. I have always made a concious effort to
raise my kids to be accepting of themselves & others.
I esp worry about this with my daughter since society
seems to send certain images to young impressionable
girls.
I realized that my being accepting of my vitiligo sends
a postive message to my kids. I am not freaking out
& upset over my spots. By my making this decision
I am telling them that one does not have to look
like everyone else. It helps reinforce the teachings
of Be Happy With Yourself. I know that I am
good & will continue to be good with my spots.
My kids are also good with me having vitligo as well.
In a society so focused on looks of one another,
I am proud to be teaching these lessons to my kids.
While this may not be the case for everyone,
it is for myself & my family.
I'm pretty comfortable & accepting of having Vitiligo.
Now I do realize this isn't the case for everyone.
I have a great support system & am very comfortable
in my body.
I also have three kids. In the middle is my 9 yr old
daughter. I have always made a concious effort to
raise my kids to be accepting of themselves & others.
I esp worry about this with my daughter since society
seems to send certain images to young impressionable
girls.
I realized that my being accepting of my vitiligo sends
a postive message to my kids. I am not freaking out
& upset over my spots. By my making this decision
I am telling them that one does not have to look
like everyone else. It helps reinforce the teachings
of Be Happy With Yourself. I know that I am
good & will continue to be good with my spots.
My kids are also good with me having vitligo as well.
In a society so focused on looks of one another,
I am proud to be teaching these lessons to my kids.
While this may not be the case for everyone,
it is for myself & my family.
Tuesday, July 5, 2011
Vitliligo Artwork
I wanted to share some artwork
done to help raise Vitligo Awareness.
The lady in the following signature tags
was created by the wonderful artist Bezfaery.
You can find her website here
I designed the signature tags to showcase the artwork
& to help raise awarness.
There is very little artwork which features Vitlitgo
in the digital tagging community. This is just one way I
can help to raise awareness.
![]()
![]()
done to help raise Vitligo Awareness.
The lady in the following signature tags
was created by the wonderful artist Bezfaery.
You can find her website here
I designed the signature tags to showcase the artwork
& to help raise awarness.
There is very little artwork which features Vitlitgo
in the digital tagging community. This is just one way I
can help to raise awareness.
Wednesday, June 22, 2011
Facebook Support Groups
I wanted to share some of the Facebook support groups
for those with Vitiligo. I know a lot of people use facebook.
If there are any problems with the links please let me know..
or of other groups which can help people.
Vitiligo Pride Here
Vitiligo Bond Inc Here
My Vitiligo Support Here
Vitiligo Anyone Here
for those with Vitiligo. I know a lot of people use facebook.
If there are any problems with the links please let me know..
or of other groups which can help people.
Vitiligo Pride Here
Vitiligo Bond Inc Here
My Vitiligo Support Here
Vitiligo Anyone Here
Friday, June 17, 2011
Vitiligo Awareness Ribbon
I have designed the above ribbon for it. I really like it. I think it conveys
everything really well about Vitiligo. I used the colors found at the National
Vitligo Foundation. http://nvfi.org/index.php
I would appreciate feedback on this from the community.We defintely need
& should have a ribbon.
Monday, June 13, 2011
Vitiligo Awareness Day, a NEED
© Ogo Maduewesi
From the Vitiligo Friends Forum
Vitiligo Awareness Day, a NEED
Vitiligo is a very disfiguring, devastating condition which can affect anyone. In a society obsessed by appearance and where physical appearance is celebrated you can feel just helpless when your appearance is threatened, often stigmatized, traumatized, and ostracized. Children are frequently teased and ridiculed by their peers. Adults experience low self-esteem, job discrimination and it interferes with relationships and marriage prospects.
The current therapy for Vitiligo focuses on halting the Progression of the depigmentation with topical immunomodulators and encouraging repigmentation with phototherapy. However, success rates of these therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo that include
Extensive awareness, enlightenment and education,
camouflages make-ups,
self-image support,
Availability and access to Vitiligo information for all,
General support and care, to name a few.
Above all extensive Vitiligo education, awareness and enlightenment campaign, this is because the Vitiligo patients needs to be accepted and treated equally without any form of stigma, discrimination and segregation to enable them take advantage of other self-help like camouflage make-up, image building programs ect.
The above is listed are exactly VITSAF’s core goal; truly we must devise a means to live healthy positive life till research is finally through with a cure for Vitiligo.
Thus our advocacy and campaign for World Vitiligo Day to bring the Vitiligo Cause to the World Center Stage, when the whole Media Channels in the World or atleast 50% of them talks about Vitiligo on every 25th of June for atleast 3years, same day the World will also be remembering Michael Jackson, there will be significant awareness on Vitiligo and improve in Quality of Life (QOL) of the Vitiligo patients. I believe strongly that all the stigma, discrimination and segregation are all due to ignorance. The patient’s trauma, low self esteem and no confidence is also due to the fact that they are misunderstood and neglected even within the medical community.
With extensive awareness on Vitiligo there will be a better understanding of the general public, attention and care within the medical community and Positive living of the patients.
Join us lets educate the world about Vitiligo on 25th of June of every year starting from June 25, 2011!!!
From the Vitiligo Friends Forum
Vitiligo Awareness Day, a NEED
Vitiligo is a very disfiguring, devastating condition which can affect anyone. In a society obsessed by appearance and where physical appearance is celebrated you can feel just helpless when your appearance is threatened, often stigmatized, traumatized, and ostracized. Children are frequently teased and ridiculed by their peers. Adults experience low self-esteem, job discrimination and it interferes with relationships and marriage prospects.
The current therapy for Vitiligo focuses on halting the Progression of the depigmentation with topical immunomodulators and encouraging repigmentation with phototherapy. However, success rates of these therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo that include
Extensive awareness, enlightenment and education,
camouflages make-ups,
self-image support,
Availability and access to Vitiligo information for all,
General support and care, to name a few.
Above all extensive Vitiligo education, awareness and enlightenment campaign, this is because the Vitiligo patients needs to be accepted and treated equally without any form of stigma, discrimination and segregation to enable them take advantage of other self-help like camouflage make-up, image building programs ect.
The above is listed are exactly VITSAF’s core goal; truly we must devise a means to live healthy positive life till research is finally through with a cure for Vitiligo.
Thus our advocacy and campaign for World Vitiligo Day to bring the Vitiligo Cause to the World Center Stage, when the whole Media Channels in the World or atleast 50% of them talks about Vitiligo on every 25th of June for atleast 3years, same day the World will also be remembering Michael Jackson, there will be significant awareness on Vitiligo and improve in Quality of Life (QOL) of the Vitiligo patients. I believe strongly that all the stigma, discrimination and segregation are all due to ignorance. The patient’s trauma, low self esteem and no confidence is also due to the fact that they are misunderstood and neglected even within the medical community.
With extensive awareness on Vitiligo there will be a better understanding of the general public, attention and care within the medical community and Positive living of the patients.
Join us lets educate the world about Vitiligo on 25th of June of every year starting from June 25, 2011!!!
Saturday, June 11, 2011
World Vitiligo Day Facebook Event
I have created an event on facebook for the World Vitiligo Day.
You are welcome to join it and rsvp to it.
Please help spread the word for us. We want to raise
awareness for Vitiligo.
http://www.facebook.com/event.php?eid=126247727458506
You are welcome to join it and rsvp to it.
Please help spread the word for us. We want to raise
awareness for Vitiligo.
http://www.facebook.com/event.php?eid=126247727458506
Thursday, June 9, 2011
Itchiness
Since I developed vitiligo, I've become very itchy.
Much more so then I was before - esp on my back.
I'm doing some reading & research. Seems to be a common
belief that the itchiness could possibly be due to another
depigmentaiton area developing. I wouldn't be surprised by this.
So does anyone else experience the itchiness? I know not
everyone experiences this part of vitiligo.Is there anything to help
with it?
Much more so then I was before - esp on my back.
I'm doing some reading & research. Seems to be a common
belief that the itchiness could possibly be due to another
depigmentaiton area developing. I wouldn't be surprised by this.
So does anyone else experience the itchiness? I know not
everyone experiences this part of vitiligo.Is there anything to help
with it?
Wednesday, June 8, 2011
World Vitiligo Day
We are working to make June 25
World Vitiligo Day. We want to raise awareness for everyone
affected by Vitiligo. Please join us in raising our voices together;
If you or someone you know are affected. We may have vitiligo
but it does not have us! We will continue to live our lives and
enjoy them!
World Vitiligo Day. We want to raise awareness for everyone
affected by Vitiligo. Please join us in raising our voices together;
If you or someone you know are affected. We may have vitiligo
but it does not have us! We will continue to live our lives and
enjoy them!
My Vitiligo Picture
This isn't the best picture but as I am light skinned,
it is hard to get my vitiligo to show up well with a camera.
But I wanted to show what some of mine looks like.
My vitiligo has started on my hands & ankles mostly.
it is hard to get my vitiligo to show up well with a camera.
But I wanted to show what some of mine looks like.
My vitiligo has started on my hands & ankles mostly.
Helpful Links
Websites for more information
National Vitiligo Foundation
http://nvfi.org/index.php
Vitiligo Friends Support Forum
http://www.vitiligofriends.org/
National Vitiligo Foundation
http://nvfi.org/index.php
Vitiligo Friends Support Forum
http://www.vitiligofriends.org/
Basic Facts
Vitiligo is depigmentation of the skin. This leads to white spots or
patches on the skin. The melanocyte pigment cells are destroyed which
means the melanin is no longer produced.
The common areas to lose pigment are:
* hands, feet, chest
* eyes, nose, mouth, belly button & genitalia
* sites of injuries
Early greying of the hair can lead to a person
developing vitiligo.
Vitiligo can be genetic but this is not always the case.
Vitiligo can develop at any age from infant to senior citizen.
It affects all races & ethnicites of people.
Vitiligo cannot be cured. It can be treated but it isn't curable.
It is imporatnt to know that it is not contagious & cannot be
" caught " from someone with it. While Vitilgo does not cause
physical pain; it can cause great emotional & mental stress
and harm to a person with it.
patches on the skin. The melanocyte pigment cells are destroyed which
means the melanin is no longer produced.
The common areas to lose pigment are:
* hands, feet, chest
* eyes, nose, mouth, belly button & genitalia
* sites of injuries
Early greying of the hair can lead to a person
developing vitiligo.
Vitiligo can be genetic but this is not always the case.
Vitiligo can develop at any age from infant to senior citizen.
It affects all races & ethnicites of people.
Vitiligo cannot be cured. It can be treated but it isn't curable.
It is imporatnt to know that it is not contagious & cannot be
" caught " from someone with it. While Vitilgo does not cause
physical pain; it can cause great emotional & mental stress
and harm to a person with it.
Welcome To My Vitiligo Blog
Hello I'm Sarah. I have Vitiligo. I have started this blog to help others like myself
& to help educate the public about Vitiligo. I welcome others to share here & interact
with the blog. Vitiligo isnt as well -known as some other conditions/illnesses. I hope to
help change that one post at a time. I encourage everyone to share here & to contact me.
The Vitiligo experiences can be different from person to person
& to help educate the public about Vitiligo. I welcome others to share here & interact
with the blog. Vitiligo isnt as well -known as some other conditions/illnesses. I hope to
help change that one post at a time. I encourage everyone to share here & to contact me.
The Vitiligo experiences can be different from person to person
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