Thursday, September 27, 2012

History Of Vitliligo

An interesting article about the history of vit. I had been curious myself about how cultures and religions had seen vit over time. Defintely worth the read. You can find the article at the below link.

History Article

Friday, August 17, 2012

Vit E-card

I came across this & wanted to share.It's aimed at all the companies
trying to get those of us with vit to try a new "cure" when in reality there is no cure.

Monday, August 13, 2012

Hair Color With Vit

As many of those with Vit know, it can affect our hair color. Often changing our hair color to grey/white. Since our hair contains the same cell as our skin, the hair therefore loses its color. I have for a long time, dyed my hair. I wanted to hide the grey hairs keep a more "natural" hair color for my age.I am in my 30s & most women my age still have the normal hair colors.

I am overdue on coloring my hair. I have it just have not gotten around to it yet.
Looking in the mirror the other day, I realized how much my hair is losing its color.
Not just the hair dye color, but its color. There is a lot more grey/white to it. Of course most would say well dye it. That's what my mom said. But part of me isn't so sure.The society normal is to dye it. No woman should have grey/white hair when young its not attractive.If men go grey, they look distinguished but if its women we simply look old. But to me, if i dye it I'll just dye it forever. Esp since the Vit has sped up the process considerably.

So I guess I'm on the fence.Do I keep dyeing my hair every few weeks or do I let it go?
I suppose its the endless circle for us with Vit. How much of our appearance do we hide & alter and how much do we accept & embrace of the Vit?

Friday, July 6, 2012

Featuring Another Blogger

I wanted to share a fellow blogger. I love her post about are Spotted humans the exception. Her blog is called makeup4vitiligo. & you can visit it here It really is an interesting post.
Like her with the panda, I identify with Giraffes. Such magnificent beautiful
gentle spotted creatures giraffes are.Of course the bigger issue is that we
need to stop seeing ourselves as a problem & embracing our spots. Maybe then society will start to do the same.

Saturday, June 23, 2012

2nd Vitiligo Abstract Painting

Here is my 2nd painting in the series.
I was aiming for the Hispanic skin color on this one.
Not sure I got it really but its darker than my first painting
so guess its okay. I need to African American still.I am doing these abstract
to reflect it can be anyone with Vit.


Baseball Game

Went to baseball game yesterday. Just a local one to see my oldest play in All-Stars playoff. There was a boy around his age helping in the snack bar. He was Caucasian like I am. I could tell he has Vit on his face.I didn't say anything to him. I considered it but was worried how it would be taken..and there were a lot of people around as well. A girl my daughter used to swim with had it pretty prominently on her back as well. I think I would feel more comfortable talking to adults about it then kids. Now of course, if anyone asks me about my spots I am very open to discussing it. But to bring it up?? I don't know I get nervous with the kids esp - not knowing how they feel about it and such. While I am accepting & okay with mine, that isn't always the case with other people & I realize that. I would never want to make someone uncomfortable about it at all.

Tuesday, May 29, 2012

Vitiligo Awareness Month

South Carolina Governor Haley has proclaimed June to be Vitligo Awareness Month!
This is a great step to bringing it more attention & to having an official Vitiligo
Awareness Day in June!Thank you Governor Haley!

On a side note, I was raised in SC. While I now reside in California, SC will always be part
of my home since I spent many years there. I am so happy to hear about this.

Thursday, May 24, 2012

Vitiligo & Skin Cancer

The current issue of Family Circle Magazine June 2012 has an article about skin cancer &
women who have survived it. In reading the article, it got me thinking about my Vitiligo and how we must use sunscreen. So I did some research and thought I would share what I have learned. Of course we all know we have to wear sunscreen, regardless of our skin color. Our vit makes us more susceptible to sunburns and other related conditions & diseases.
I'll continue to wear my sunscreen to prevent sunburns and hopefully prevent skin cancer in the future

According to the AVRF ( American Vitiligo Research Foundation ) People with vitiligo do not suffer from increased risk of skin cancer.
It was believed for a long that that skin color helped with protection from the sun's rays.But this isn't true. The SPF is only between 2-3 for the brown/black melanin and the red pheomelanin doesn't offer much protection at all. Even wit having vit patches, where the pigment is nearly gone completely,
not everyone with Vit will get a sunburn. There are two studies which have shown that having vit doesn't necessarily coincide with a greater sun sensitivity.

" Malignant Melanoma (MM) is another skin cancer which can be very dangerous if not recognised early.

People with very fair skin (those who never tan or only very slightly) do have a higher risk to develop melanoma compared to dark skinpeople at any body site regardless of sun exposure or not. These tumours can develop in existing moles but they can also arise totally new as pigmented as well as non-pigmented tumours. Early recognition and excision are important for the outcome.

The observation that melanoma is more frequent in patients with vitiligo originates from a study which included 623 Caucasian patients with melanoma of the Oncology Clinic at the Department of Dermatology at the University of Hamburg/Germany (Schallreuter KU et al, Dermatologica (1991)).

In this study 11/623 patients with melanoma had a true vitiligo long before their melanoma was diagnosed. Considering that 1 in 200 has vitiligo and 1 in 12,000 develops melanoma, these results suggested a significantly higher risk to develop melanoma for patients with vitiligo and fair skin (Schallreuter KU et al, Dermatologica (1991)).

In our Institute for Pigmentary Disorders we have indeed found in 2 Caucasian patients with vitiligo melanoma in a patient group of 1800 Caucasian patients with vitiligo supporting the above findings (Schallreuter KU, unpublished results).

Based on the above results the take home message and recommendation is that patients who have vitiligo should undergo an annual total body examination at their Dermatologists in order to recognise a possible melanoma as early as possible."

On a side note, I do wish the magazine had included information about Vit & skin cancer. It would of been very useful & informative & helpful to the vit community.

Sunday, March 11, 2012

Awareness Video

I am very accepting of my vitiligo. However I also realize not everyone
has the support which I have. There is a need for a World Vitiligo Day and
to raise awareness and attention to this disease and to help educate everyone
about it. This is a powerful video to help with the awareness.

Also please sign here to help us get a World Vitiligo Day
and bring attention worldwide to this disease.

Tuesday, February 14, 2012

MMA Fighter Scott Jorgenson

My husband was playing the new UFC 3 Undefeated game on XBOX360 when we saw one of the fighters, Scott Jorgenson in the game. It was obvious immediately that he has Vitiligo. I thought this was awesome! That both UFC & THQ portrayed this fighter as he is in reality. You can check him out here and see the vit.I think I may have a new favorite fighter. Definitely someone to follow. I know it is extra special and a boost when we as a community see a celebirty or athlete with vit.

I also wanted to share that Scott Jorgenson is reportedly going to do a video with Krizz Kaliko who also has
vitiligo. You can read more about this here

Monday, February 6, 2012

In The Press With Vitligo

A very interesting article about Vitiligo and a member of the press Lee Thomas
having Vitiligo. Worth the read for sure.Also talks about Michael Jackson
and his having Vitiligo


Saturday, February 4, 2012

First Painting In Series

Okay Here is the painting. I left it faceless to show
that it can affect anyone. I didn't want to make it a man or woman in the painting.
This one is suppose to be Caucasian but I hope to do more paintings with each one
featuring a different race on the skin.
I know its rough but then again we all know Vit isn't perfect at all so I think
it kinda fits. What do you all think?

Friday, February 3, 2012

Painting Series

I'm starting a series of abstract paintings featuring Vitlilgo.
While not wonderful, I think the paintings will be good.
Each painting will feature a different skin tone/color and
Vitiligo on the skin. Being that it takes different patterns and
affects all races, I am doing this to showcase how it affects everyone.

The first painting is drying now. Once it is all dry, I'll get a good photo
of it & post it on here.