I wanted to share some of the Facebook support groups
for those with Vitiligo. I know a lot of people use facebook.
If there are any problems with the links please let me know..
or of other groups which can help people.
Vitiligo Pride Here
Vitiligo Bond Inc Here
My Vitiligo Support Here
Vitiligo Anyone Here
Wednesday, June 22, 2011
Friday, June 17, 2011
Vitiligo Awareness Ribbon
I have designed the above ribbon for it. I really like it. I think it conveys
everything really well about Vitiligo. I used the colors found at the National
Vitligo Foundation. http://nvfi.org/index.php
I would appreciate feedback on this from the community.We defintely need
& should have a ribbon.
Monday, June 13, 2011
Vitiligo Awareness Day, a NEED
© Ogo Maduewesi
From the Vitiligo Friends Forum
Vitiligo Awareness Day, a NEED
Vitiligo is a very disfiguring, devastating condition which can affect anyone. In a society obsessed by appearance and where physical appearance is celebrated you can feel just helpless when your appearance is threatened, often stigmatized, traumatized, and ostracized. Children are frequently teased and ridiculed by their peers. Adults experience low self-esteem, job discrimination and it interferes with relationships and marriage prospects.
The current therapy for Vitiligo focuses on halting the Progression of the depigmentation with topical immunomodulators and encouraging repigmentation with phototherapy. However, success rates of these therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo that include
Extensive awareness, enlightenment and education,
camouflages make-ups,
self-image support,
Availability and access to Vitiligo information for all,
General support and care, to name a few.
Above all extensive Vitiligo education, awareness and enlightenment campaign, this is because the Vitiligo patients needs to be accepted and treated equally without any form of stigma, discrimination and segregation to enable them take advantage of other self-help like camouflage make-up, image building programs ect.
The above is listed are exactly VITSAF’s core goal; truly we must devise a means to live healthy positive life till research is finally through with a cure for Vitiligo.
Thus our advocacy and campaign for World Vitiligo Day to bring the Vitiligo Cause to the World Center Stage, when the whole Media Channels in the World or atleast 50% of them talks about Vitiligo on every 25th of June for atleast 3years, same day the World will also be remembering Michael Jackson, there will be significant awareness on Vitiligo and improve in Quality of Life (QOL) of the Vitiligo patients. I believe strongly that all the stigma, discrimination and segregation are all due to ignorance. The patient’s trauma, low self esteem and no confidence is also due to the fact that they are misunderstood and neglected even within the medical community.
With extensive awareness on Vitiligo there will be a better understanding of the general public, attention and care within the medical community and Positive living of the patients.
Join us lets educate the world about Vitiligo on 25th of June of every year starting from June 25, 2011!!!
From the Vitiligo Friends Forum
Vitiligo Awareness Day, a NEED
Vitiligo is a very disfiguring, devastating condition which can affect anyone. In a society obsessed by appearance and where physical appearance is celebrated you can feel just helpless when your appearance is threatened, often stigmatized, traumatized, and ostracized. Children are frequently teased and ridiculed by their peers. Adults experience low self-esteem, job discrimination and it interferes with relationships and marriage prospects.
The current therapy for Vitiligo focuses on halting the Progression of the depigmentation with topical immunomodulators and encouraging repigmentation with phototherapy. However, success rates of these therapies is dramatically low, variable, and not permanent. Therefore, new therapeutic approaches are warranted. With many Vitiligo patients responding poorly to the current therapies, more focus should be directed to improve non-medical consequences of Vitiligo that include
Extensive awareness, enlightenment and education,
camouflages make-ups,
self-image support,
Availability and access to Vitiligo information for all,
General support and care, to name a few.
Above all extensive Vitiligo education, awareness and enlightenment campaign, this is because the Vitiligo patients needs to be accepted and treated equally without any form of stigma, discrimination and segregation to enable them take advantage of other self-help like camouflage make-up, image building programs ect.
The above is listed are exactly VITSAF’s core goal; truly we must devise a means to live healthy positive life till research is finally through with a cure for Vitiligo.
Thus our advocacy and campaign for World Vitiligo Day to bring the Vitiligo Cause to the World Center Stage, when the whole Media Channels in the World or atleast 50% of them talks about Vitiligo on every 25th of June for atleast 3years, same day the World will also be remembering Michael Jackson, there will be significant awareness on Vitiligo and improve in Quality of Life (QOL) of the Vitiligo patients. I believe strongly that all the stigma, discrimination and segregation are all due to ignorance. The patient’s trauma, low self esteem and no confidence is also due to the fact that they are misunderstood and neglected even within the medical community.
With extensive awareness on Vitiligo there will be a better understanding of the general public, attention and care within the medical community and Positive living of the patients.
Join us lets educate the world about Vitiligo on 25th of June of every year starting from June 25, 2011!!!
Saturday, June 11, 2011
World Vitiligo Day Facebook Event
I have created an event on facebook for the World Vitiligo Day.
You are welcome to join it and rsvp to it.
Please help spread the word for us. We want to raise
awareness for Vitiligo.
http://www.facebook.com/event.php?eid=126247727458506
You are welcome to join it and rsvp to it.
Please help spread the word for us. We want to raise
awareness for Vitiligo.
http://www.facebook.com/event.php?eid=126247727458506
Thursday, June 9, 2011
Itchiness
Since I developed vitiligo, I've become very itchy.
Much more so then I was before - esp on my back.
I'm doing some reading & research. Seems to be a common
belief that the itchiness could possibly be due to another
depigmentaiton area developing. I wouldn't be surprised by this.
So does anyone else experience the itchiness? I know not
everyone experiences this part of vitiligo.Is there anything to help
with it?
Much more so then I was before - esp on my back.
I'm doing some reading & research. Seems to be a common
belief that the itchiness could possibly be due to another
depigmentaiton area developing. I wouldn't be surprised by this.
So does anyone else experience the itchiness? I know not
everyone experiences this part of vitiligo.Is there anything to help
with it?
Wednesday, June 8, 2011
World Vitiligo Day
We are working to make June 25
World Vitiligo Day. We want to raise awareness for everyone
affected by Vitiligo. Please join us in raising our voices together;
If you or someone you know are affected. We may have vitiligo
but it does not have us! We will continue to live our lives and
enjoy them!
World Vitiligo Day. We want to raise awareness for everyone
affected by Vitiligo. Please join us in raising our voices together;
If you or someone you know are affected. We may have vitiligo
but it does not have us! We will continue to live our lives and
enjoy them!
My Vitiligo Picture
This isn't the best picture but as I am light skinned,
it is hard to get my vitiligo to show up well with a camera.
But I wanted to show what some of mine looks like.
My vitiligo has started on my hands & ankles mostly.
it is hard to get my vitiligo to show up well with a camera.
But I wanted to show what some of mine looks like.
My vitiligo has started on my hands & ankles mostly.
Helpful Links
Websites for more information
National Vitiligo Foundation
http://nvfi.org/index.php
Vitiligo Friends Support Forum
http://www.vitiligofriends.org/
National Vitiligo Foundation
http://nvfi.org/index.php
Vitiligo Friends Support Forum
http://www.vitiligofriends.org/
Basic Facts
Vitiligo is depigmentation of the skin. This leads to white spots or
patches on the skin. The melanocyte pigment cells are destroyed which
means the melanin is no longer produced.
The common areas to lose pigment are:
* hands, feet, chest
* eyes, nose, mouth, belly button & genitalia
* sites of injuries
Early greying of the hair can lead to a person
developing vitiligo.
Vitiligo can be genetic but this is not always the case.
Vitiligo can develop at any age from infant to senior citizen.
It affects all races & ethnicites of people.
Vitiligo cannot be cured. It can be treated but it isn't curable.
It is imporatnt to know that it is not contagious & cannot be
" caught " from someone with it. While Vitilgo does not cause
physical pain; it can cause great emotional & mental stress
and harm to a person with it.
patches on the skin. The melanocyte pigment cells are destroyed which
means the melanin is no longer produced.
The common areas to lose pigment are:
* hands, feet, chest
* eyes, nose, mouth, belly button & genitalia
* sites of injuries
Early greying of the hair can lead to a person
developing vitiligo.
Vitiligo can be genetic but this is not always the case.
Vitiligo can develop at any age from infant to senior citizen.
It affects all races & ethnicites of people.
Vitiligo cannot be cured. It can be treated but it isn't curable.
It is imporatnt to know that it is not contagious & cannot be
" caught " from someone with it. While Vitilgo does not cause
physical pain; it can cause great emotional & mental stress
and harm to a person with it.
Welcome To My Vitiligo Blog
Hello I'm Sarah. I have Vitiligo. I have started this blog to help others like myself
& to help educate the public about Vitiligo. I welcome others to share here & interact
with the blog. Vitiligo isnt as well -known as some other conditions/illnesses. I hope to
help change that one post at a time. I encourage everyone to share here & to contact me.
The Vitiligo experiences can be different from person to person
& to help educate the public about Vitiligo. I welcome others to share here & interact
with the blog. Vitiligo isnt as well -known as some other conditions/illnesses. I hope to
help change that one post at a time. I encourage everyone to share here & to contact me.
The Vitiligo experiences can be different from person to person
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