Hearing Loss

 I saw a post today on a Vitiligo page I follow

on IG. It said vitiligo can affect hearing loss.

I was like really? Wow! Now, I have partial hearing loss

in both ears & wear hearing aids. I've always figured

it was due to my numerous ear infections growing up.

However, now I wonder if the Vitiligo has also played a part.

In doing some online research, it seems up to 38% of 

people diagnosed with Vitiligo, can also experience

some degree of hearing loss. So hmmm

I'm not quite sure exactly why I do have hearing loss.

I can't point to one thing & say this is why.

So maybe it is the combination of my

ear infections along with my Vit.

My Hands

 I know I haven't posted in a long time,

but I was going through photos I had

taken last year, & noticed how this 

one photo shows my hands with my Vitiligo.

And since this is Vitiligo Awareness Month,

I thought it was perfect timing.

I am only showing my hands as the

photo isn't necessarily safe for all eyes.

Photographs by Jazz & Update

I came across an article on People.com

about a Photographer who has Vit.

She also has a photography project

featuring others with Vit as well.

You can find her website here.

While I'm here, thought I would

do a small update. I didn't realize it

had been so long since my long post.

I am now working Full time in

a hotel & as such, my spots are 

growing quite a bit. It hasn't really

been an issue at work for me. 

Bullied, Sings For The Pope

I came across this article today on People.com & wanted to share. 

A 17 year old young lady who has been bullied because of her Vitiligo

sang for the Pope. 

You can read the article here.

It does get better. Just remember that. Take life one day at a time &

know things get better.

Dentures - Day 1

Well I apologize for not posting more about the journey to my dentures. It was a lot of back

& forth trips for quick visits. Today was D -Day. I got my dentures. I thought I was prepared for them but nope I wasn't. It is really quite a sight to look in a mirror & see a full mouth of teeth after not seeing them for 5-7 years. 

They feel very odd and out of place in your mouth - even if they do fit the shape of your mouth. 

Very weird. A friend said my mouth would feel smaller and she is right. I was prepared for having to adjust to eating with them. I was NOT  ready for it to seem nearly impossible to eat with them. I can kinda bite with them but chewing??? Forget about it. That will take a lot of practice as I feel like I have forgotten how to do that completely.  

Drinks are hard too & so is talking - or it seems that way to me. My daughter says it can be a little hard to understand me sometimes.  Also, my mouth seems to make saliva in excess amounts while I wear them. Very annoying. Swallowing a lot or trying too to get rid of the saliva. 

My gums were sore when I took them off this evening. We'll see how day 2 goes.

Goo

Disgusting goo! Yesterday I had the molds done for my dentures. This involved lots of
goo on two plastic plates being put into my mouth one at a time. The goo is extremely thick
paste and just awful. The top mold didn't want to come off my gums and it hurt to be removed.
I also about choked on the top one as my gag reflex really acted up. But thankfully they are done.
I go back on the 31st for adjustments. I think in total I'm looking at another 3-4 weeks before I have my dentures.

Afterwards, we stopped by the butcher shop to get some meat for dinner. Yay meatloaf b/c its soft!
There was an older gentleman with vit on him. Mom & I chatted with him a bit but while he knew he had it, didn't seem to know much about it. His vit was much more spread than mine and he did say it had spread a lot in the past year.  The man didn't know it was an autoimmune condition though.

I have a heart

developing on my left cheek. I wondered how my face would react to the surgery. I've healed very, very well. The heart isn't a definite vit spot yet but it's developing for sure. I took a picture & lightly traced it to help show it better. I think its a double heart but I can't be sure. What do you all think? 

I noticed I also have one my neck too. 

I have a spot that was a butterfly on my arm but its changing slightly :(

There is also an umm rather falic one located on an inner upper thigh too.

That one has been around. I won't show it but you can imagine

what it looks like lol. Oh btw, I have started gently brushing my

gums now. Was given the okay by the surgeon.

I go on the 16th for my dentures molds.